Wow! Coming home very energized after a great International #Neuroethics Society meeting; I’ve attended many and this was the most engaging. Truly international, cutting-edge and transdisciplinary perspectives on urgent topics such as neuroenhancement regulation, community engagement, “#neurorights,” and the brain disease model of chronic pain. https://www.neuroethicssociety.org/2024-annual-meeting-schedule

@jonny @dingemansemark Well I'm always glad when someone reads a paper of ours, but I didn't want to assume credit for some of the really interesting technical distinctions in the article that originated from my co-authors. Our other work is interesting too, promise! (Though, not a guarantee that it's equally interesting to you...)

Also want to re-plug in this thread the hiring announcement that started this conversation, we're looking for an empirical neuroethics postdoc and a decision neuroscience RA: https://decisionlab.ucsf.edu/hiring/

@jonny @dingemansemark Thanks! I'd stress that this paper is really more from my colleagues than me (3rd author on a 4 author paper) as they're all much more expert than I am on the neuroscience of speech and current technical capabilities. I'm happy to have contributed ideas about agency, privacy, disability, and human-centered design. Narayan and I in particular are continuing to do work on ethical and societal implications of this research, hoping to have more on this later this year.

We're #hiring again! My lab is now looking for a #postdoc in empirical ethics of dementia and neurotechnology, and a research assistant in #DecisionScience research in people with neurologic disease. Please share with anyone who might be interested: https://decisionlab.ucsf.edu/hiring/ #UCSF #ScienceJobs #SocialScience #bioethics #neuroethics #neurotech #jobs

@manisha Hi thanks for your interest! There's some clinical context that I'd left out of my original post (it's alluded to in the paper). Our study is a comparison of experiences, but it's not really a choice of one or the other--generally speaking, RNS is a procedure for patients who are not candidates for resection (multiple seizure foci, close proximity to language or motor function, etc.), though there are some cases where this gets blurry. Resection is generally presented as potentially curative treatment, while RNS is presented more as reducing seizure burden.

Happy to share our #NewPaper on experiences of patients undergoing #epilepsy surgery, comparing traditional resective surgery to #NeuroPace responsive neurostimulation, using interviews and ethnographic observation of patient visits. First, we documented circuitous treatment paths described by patients and caregivers as "winding," "confusing," and "chaotic." In two of our participants, continual ECoG recordings from an implanted RNS device enabled the detection of a single seizure focus for subsequent resective surgery. Second, RNS was perceived with greater safety, viewing the act of "putting in" a device as reversible in contrast with the irreversibility of "taking out" brain tissue in a resection. Third, evaluation of postoperative course reflected different aims and expectations, with resection understood in "all-or-nothing" terms such that any post-operative seizure was perceived as a failure, while patient expectations in RNS were more incremental. #neuroethics #OpenAccess at https://www.sciencedirect.com/science/article/pii/S152550502400088X

On Tuesday, Feb 27 the Decision Lab will be joining the Bay Area #OpenScience Group for an informal conversation about reproducibility, values, and practices. Looking forward to this conversation with folks from #Stanford, #Berkeley, & #UCSF! https://guides.lib.berkeley.edu/openscience/events

#HappyNewYear 🐲🎇

@CindyWeinstein great to see you there, and I’m very happy to have the book!